Patient Resources

Overview of resources tailored to patients and families.

Patient Educational
Resources

Glossary of Terms, How to Read Your Pathology Report, and Uterine Anatomy.

Second Opinion Guidance and Insurance Information

Step-by-step guide on requesting a second opinion. How to navigate insurance for second opinions.

Support and Community Resources

Mental health resources, support groups, guidance for coping with rare diagnoses, financial support or grants for rare diseases.

Patient Stories